Thursday 1 December 2016

Rosie without a Ramp - Rosie Lawy 

In these extracts from Rosie's blog https://rosiewithoutaramp.wordpress.com/ she shares her recollections of coming to terms with using a walking stick before she used a wheelchair and finding a ramp so that she can visit friends in their homes. To date the search for a ramp has been unsuccessful but has found the journey a learning experience. I am sure that Rosie would welcome suggestions if any reader has experience of a suitable portable ramp.

Hi, I’m Rosie and I use a wheelchair.  Confession’s over.  I don’t like it when people say I am confined to a wheelchair, because for me, my wheelchair gives me freedom to move about my own space and to travel into the wider world.  My latest obstacle is proving difficult to overcome and lies behind my reason for starting this blog.  I find that I often cannot visit friends in their houses because there are steps up to the front door and over the threshold.  I have been looking for a ramp that is light enough to carry on the back of my wheelchair but is robust and flexible enough to cope with me and the weight of the chair and with varied heights of steps.  No success so far.

But I realised that up to the point of researching ramps, I have gained a lot of knowledge and information about negotiating the world as someone with a disability.  I hope that this blog may be of help to anyone with an interest in alleviating difficulties for someone not wholly able physically, by giving them the benefit of my experience.

For the time being, I’m going to call my blog Rosie without a Ramp. I hope to be able to change it one day.

And I hope you begin to understand my personal motto, Movement is Life, and will adopt it for yourself.

Sticks

Yes, I’m Rosie, still without a ramp, and, as you know, I use a wheelchair.  But it was not always so.  Despite falling over my feet, foolishly I did not use anything for many years.  Then I finally decided this was silly and started to use a stick.

As I was a teacher, my stick had to accompany me into the classroom, and I was very worried about the children’s reaction to it. Now I think that this was probably a way to displace my own unease at admitting that I was unsteady on my feet.  Anyway, I called my stick Wacky and took him with me to work.  He soon became known as Wacky the Iraki  –  a good, short, northern ‘a’ in Iraki for the rhyme, and a ‘k’ instead of ‘q’ for looks.  As you can probably guess from that use of a gendered pronoun, my stick became more than a mere inanimate object in my classroom.  The nickname came about because it was around the time of the first Iraq war and the children already knew that my family was from Iraq.  Wacky was very helpful in pointing out where Iraq was on the map and in helping my pupils to understand that something happening far away touched the lives of children and families just like them.  So, Wacky became not only a teaching aid but also an aid to me, giving me back some independence I felt I had been losing.

Back to the practicalities of sticks! First, use one if it enables you to be safer as you get around.  Second, use two if it gives you more confidence!  But seriously, for me having a stick, initially only the one, gave me confidence to walk on uneven surfaces without fear of falling.  I could be safe – a stick stopped stones from tripping me up and hurting me!  But, third, when it comes to sticks, getting one that is the right height for you makes a huge difference. Because of my way of walking, kicking out my feet, I needed a stick that was long, so long that it would be unhelpful for someone with a normal gait.  A short stick may make you stoop.  Try out different lengths to work out what is best for you.* Fourth, think about the type of handle you want.  And fifth, don’t be afraid to ask for tips about getting into the rhythm of walking with a stick (or two) and particularly how to use it going up and down stairs.

And don’t forget, movement is life.

*The accepted way to measure the length of a stick is to stand with your arms hanging loose at your side and to turn your hands to a right angle from your body.  The space from there to the floor should be the starting point for working out how long it needs to be. Introducing myself


Best Websites

www.cheshirefire.gov.uk/public-safety 
Fire safety is so important for you and your family. You can request a free fire safety visit that will help you address any fire risks and they will also provide a free smoke alarm. There are similar initiatives in other areas.

www.cheshireeast.gov.uk/care-andsupport/support-to-stay-at-home
If you live in East Cheshire this site has information about support to stay at home such as help with home maintenance, Finding a contractor, adaptations to your home, financial help for home adaptations, telecare and staying safe at home.

www.metoffice.gov.uk/services/mobiledigital-services/weather-app
It isn’t fun being out in severe weather if you have mobility problems. Make sure you stay one step ahead of the weather with the new Met Office weather app. As well as daily weather forecasts it also give you UK National Severe Weather Warnings.

www.nhs.uk (or in Wales www.wales.gov.uk/ immunisation, Scotland www.nhs24.co and NI www.dhsspsni.gov.uk)
Don’t forget your seasonal Flu jab. These sites have more information about seasonal flu.

Useful Gadgets

Electric underblankets
The bees knees I was introduced to electric under blankets following a lucky escape when a hot water bottle burst.  I have a profiling bed and use the back support daily.  The best one I found was the Dreamland fleece fitted electric under blanket.  It’s been fine whilst others kept breaking after a few months.  It has 6 heat settings and can be on for either 1 or 9 hours. I plug it into a timer switch to keep on for 2 – 3 hours, which is enough for me!  You can get them from John Lewis (single bed £40) with a 3 year guarantee. Well worth it!
http://www.johnlewis.com/dreamland16295-heated-fleece-fitted-single-electricunderblanket-white/p2999603#prev 

Message in a Bottle
A free and simple way to ensure that essential information is readily available to the emergency services should you suffer an accident or sudden illness at home. Free bottles are available in participating GPs surgeries, pharmacists, libraries, voluntary organisations and community groups.

Where’s My Droid
Having knocked myself out after a fall it seemed a good idea that I had some way for people to find me. The last thing I wanted was to lose my independence. I installed a free app called Where’s My Droid on my phone. It uses the GPS on the phone to shown the location on a Google map. If the battery runs out it records the last location. Also great if you lose your phone. www.wheresmydroid.com

Samsung phone voice activated camera mode
Do you struggle taking photos with your smart phone?  Keeping a steady hand, shaking it when you press the shutter button?  If you’ve a Samsung phone, you might have a ‘voice activated’ mode built in.  It’s great – you just say the word ‘smile’ or ‘cheese’ and it takes the photo automatically.  It can be used to take videos, use the timer mode or go to the gallery too. To switch it on, open the camera and click on settings (the cog) then the 3 dots.  Look for a microphone symbol that has ‘voice control’ under it – then tap it to switch it on.  Or depending on the model you have, touch the > in camera mode and then an icon with a microphone. Simples!   
More details are on the link below http:// www.samsung.com/us/support/answer/ ANS00040476/ 

Do you have any items that are great that you’d like to let us know about? Please contact the One Voice team!

Benefits ofRowing Machines by Karen Pritchard and Sanjay Vaja

The health and fitness benefits of rowing machines are much the same as those of water-based rowing, with a few bonus benefits that shouldn’t be overlooked.

Improves Cardiovascular Fitness 
Whenever you perform sustained exercise that increases your heart rate and breath volume, you’re working on your cardiovascular fitness. Rowing is great for the heart and lungs because it engages every major muscle group. That, in turn, requires your heart to pump more blood to your working muscle tissue delivering energy and nutrients to your cells while buffering away waste by-products, including carbon dioxide and lactic acid.

The body is incredibly efficient, and doesn’t like to exert itself, so when forced to work harder than it’s used to, it makes physiological adjustments so future exertion feels easier. When your heart pumps and you breathe harder, your body adapts so that the next time it feels a little easier. Just like that, you’ve improved your cardiovascular fitness.

Increases Total-Body Muscular Strength and Endurance 
Muscular strength and muscular endurance are two different things. In a nutshell, muscular strength is how much weight a particular muscle group is capable of lifting in a single effort – much like a single bench press. Muscular endurance, on the other hand, is how much weight a particular muscle group can lift repeatedly over time. For instance, how long you can ride a bike up a steep incline.

When rowing (as with swimming), you can increase both your muscular strength and muscular endurance because you’re repeatedly pushing and pulling against resistance for the entirety of your workout, spurring physiological adaptations that future exertion feels easier. That said, by increasing resistance over time, your muscles will grow and develop, becoming stronger.

What really makes rowing stand out is that it works your entire body. During the drive phase you’re engaging the major muscle groups of your legs first, then your core, and finally your upper body and back.

Low Impact 
As long as you maintain good form, rowing is easy on the joints. Because your feet remain in contact with the foot pads and your hands keep contact with the handles, there’s little to no impact being placed on the ankles, knees, hips, elbows or shoulders, all of which are prone to injury. This also makes it an appropriate form of exercise for those who are nursing an injury, or who feel physically uncomfortable during weight-bearing exercises.

A rowing machine is available to use here at the NeuroMuscular Centre, just speak to one of the physios and they will advise you and to ensure you’re using it properly. Rowing is an excellent form of exercise, but it’s not without risks. Poor form can result in injury, particularly to the lower back. And, as with any form of exercise, start slow    and work your way up.

Benefits of rowing here at the NMC
I enjoy using the rowing machine here at the centre. I first started to really get into it for Muscle Month. I feel much better in myself, uplifted and motivated, once I have completed my time on it. I started slowly and worked my way up on it. Rowing also helped me lose some weight which was a pleasant surprise!

Hand Washing - A Timely Reminder

Basic hygiene, and in particular hand washing, is not the most exciting thing to talk about, but with cold weather approaching,  and all the bugs associated with it, it seems fitting to remind everyone to be clean-conscious.

Winter vomiting virus can be very serious, and unfortunately cannot be eradicated  by hand gels/wipes etc.  Good cleanliness and handwashing is therefore extremely important.
There are various web-sites available to explain the procedure for hand-washing (just ask ‘Google’), but the basics are: 

• Wet hands completely
• Soap using any type, but plenty of it!!
• Wash hands thoroughly.  You should continue washing for approximately 20 seconds, and a good way of estimating this is to hum the tune ‘Happy Birthday’ twice.  Parts often missed are the back of thumbs and wrists. 
• Rinse all soap off.  If you are particularly concerned, or you have been ill,  turn off the tap using a paper towel.
• Dry thoroughly.

The NMC asks that everyone, including patients, staff and visitors, should be symptom-free from diarrhoea and vomiting  for 48 hours before they attend. Coughs and colds are also a big problem, particularly for those who already have compromised breathing or immune problems and so you are asked to bear this in mind when you attend. 
If you are in any doubt, then contact the NMC for advice, and please let them know with as much advance warning as possible if you wish to cancel an appointment for any reason.

Information Pension for Direct Employer

In 2012 the United Kingdom government introduced new pensions legislation.

One of the requirements of this legislation is that all employers automatically enroll certain employees into a workplace pension.

Disabled People who are Individual Employers employing Personal Assistants will have to consider whether their Personal Assistants qualify to be automatically enrolled into a workplace pension. They will therefore have new obligations to take into account.

Income Tax and National Insurance
If you are an Individual Employer you will need to check whether your Personal Assistant is a “qualifying employee”. All employees who must be automatically enrolled or who have a right to join a workplace pension are put into one of three categories, so you will need to check whether your Personal Assistant falls into one of these categories. They are based on people’s age and their earnings.

How much is the Workplace Pension going to cost Individual Employers?
Contributions are made through 3 different contributors, the Employer, the Employee and the Government. Each contributor will be expected to contribute a minimum amount and these amounts will eventually increase over a period of time.

More information on this topic is available at http://www.disabilityrightsuk.org/individualemployers-and-workplace-pension-schemespersonal-assistants

Volunteering

You may occasionally have encountered a large blue smurf pushing a wheelbarrow around the NMC grounds.

If you take a closer look it could actually be my good-self decked out in bobble-hat, wellies and a blue Barclays Tee-shirt. It pays to dress for every type of weather if you spend any length of time outdoors. Sunglasses and a cagoule are also essentials!

I have been a Barclays Volunteer for at least the last 10 years (probably a lot more) and have worked at various local charities and schools. I have undertaken projects including refurbishing a small-pets enclosure (the pets were on holiday for the day), hand-painting a mural of Noah’s Ark, cutting up cheese and buttering baguettes, serving up portions of Irish Stew, door-steward at Chester Cathedral and last but not least Gardening.

I have learnt many important life-skills over the years:
• If you drop a mobile phone into a 5 litre bucket of magnolia emulsion, no amount of rubbing with a wet rag will restore the phone to its former glory.
• When you and several colleagues are all at the top of pairs of steps ladders, one of the things you don’t want to see at the bottom is an over-excited mouse looking for a convenient exit.
• Mushroom Risotto, if stirred for long enough, is an effective facial sauna.
• If you cut up enough brie you can become lactose- intolerant.
• There is always a nettle or something with thorns in every pile of garden rubbish.
• Wheelbarrow tyres always go flat just when you have a heavy load to move.
• Secateurs have a life of their own and are never where you last saw them.

Many of the people who accompany me on volunteering events are serial offenders and I am lucky that we all seem to want to put in some hard-work, have a laugh together and eat lots of the lovely sandwiches the NMC provide for us. On the odd occasion where some-one has just turned up “for a day off work” they have not returned for a second visit. It has been a pleasure to show my colleagues around the NMC and for them to see and feel a part of the excellent work that goes on there. Many had never have heard of Muscular Dystrophy or the NMC to begin with but over the years they have seen first-hand the difference that practical support can make to people’s lives.

Barclays provides up to £500 funding for every event that comprises of 5 or more members of staff and although the application process can be a little problematic we have always got there – thanks to Claire in the NMC office.  Volunteering allows people to grow in confidence and form bonds with people they would not encounter in their everyday life. It broadens your knowledge and outlook and genuinely gives you a “feel-good factor”. It doesn’t really matter what you do, there is always fun to be had out there and a good cause that will benefit from your help.

Accessible Caravanning by Mark Chapman




Since I was young my family have always had caravans but because I use an electric wheelchair, it is too big to fit in the caravan so I had to sleep in the awning outside.

About six years ago I started to feel the cold more, so we decided that we’d buy a caravan and get it adapted so that I could get inside out of the cold. We had the door widened, a fold up ramp fitted, my dad installed a profiling bed and the toilet was made accessible. Once I was in the caravan we used our portable hoist to hoist me onto the toilet and into bed.

We’ve only ever been away in the caravan around the UK, we’ve been to Silverstone for the F1, Carfest and the London 2012 Olympics just to name a few places we’ve been. However this year we ventured into France, to the Cote D’Azure in the South of France. First we got the ferry over and then on the way down we had three stop offs, the first was   Calais, then Paris, then Lyon and then we
ended up camping in a place called Mandelou - la Napoule just down the road from Cannes. The weather was beautiful, it was very hot just a tad below 36 degrees. Luckily the campsite had its own pool. We took my shower chair so that I could be wheeled into the pool, so I went swimming a few times while we was there. My highlight of the whole holiday though has to be going in the sea. This was possible because all along the beaches there are plages where you can go on the beach, then they have wheelchair accessible beaches called Handiplages, where they have metal runways down to the sea, beach wheelchairs that have giant wheels and floats on and they have disabled changing facilities with showers. We found out that they have these all over the French coast and the beach wheelchairs are free of charge for the disabled. So I got to go in the sea for the first time in 17 years! It was perfect, I could sun bathe and then when I got too hot I would just wheel into the sea. Now that is the life! For more information visit www.handiplage.fr“So I got to go in the sea for the first time in 17 years!”

Keep Strong Bones

Vitamin D helps to keep bones and teeth strong, and improves bone density.

It also reduces the incidence of falls in older people In fact, vitamin D plays a major role in the absorption of calcium and phosphorus, and in their proper utilisation.

We get most of our vitamin D from sunlight on our skin. The vitamin is made by our body under the skin, in reaction to summer sunlight. However, if you are out in the sun, take care to cover up or protect your skin with sunscreen before you turn red or get burnt. Many people can’t understand how vitamin D can be so good for so many different things. Most of the cells in your body, including brain, heart, blood, muscles, bones, liver and kidneys have special receptors for taking in vitamin D when needed, not just bones. That is why the benefits of optimum vitamin D are so diverse. In each case, those receptors are there for a reason, but the reason is different for each type of cell because each cell is specialized for a particular kind of work. If a cell is able to access vitamin D then it performs optimally. If not, it just has to manage without and do the best it can.

Vitamin D is a powerful anti-inflammatory agent, which may also contribute to its effectiveness in reducing some types of muscular pain. Older people with high vitamin D levels lose their muscle mass more slowly than those with low vitamin D levels.

Being severely deficient for a few months may affect your well-being in areas such as:
• feeling depressed
• poor resistance to infections
• increased pain, especially in bones and muscles
• increased inflammation
• feeling tired and sleepy during the day

Not everyone with vitamin D deficiency experiences all of these symptoms. In fact, some people are not aware of any symptoms at all. But even if you have no symptoms, a vitamin D deficiency still increases your risk for many serious conditions.

The symptoms of vitamin D deficiency can be very subtle, and may only worsen gradually over many years. And all of these symptoms can have other causes.

If you notice any of these symptoms – which may be worse in winter when vitamin D levels are at their lowest –  It is always best to consult with your GP if you have any concerns.  There are some rare conditions which can make you hypersensitive to vitamin D
• primary hyperparathyroidism
• sarcoidosis
• granulomatous diseases
• lymphoma
• histoplasmosis
• leprosy
• coccidioidomycosis
• some cancers.

If you have one of these conditions you will be under a doctor’s care and should only take vitamin D if it is prescribed for you.

If you suffer from kidney disease you also need to be careful about taking vitamin D, because of the danger of kidney stones. The reason for this is that vitamin D is a powerful hormone with far-reaching effects in the body. It can affect medications, treatment plans and dosages.
Actually you don’t need to remember these specific conditions, because there is only one general rule to remember:

Don’t take vitamin D if you are being treated for any condition by your doctor, without consulting him/her first.

An interview / profile of Lyndsey Cannon-Potts, our Head of Fundraising at NMC

Tell us a bit about yourself, apart from your incredible fundraising talents? What do you love to do?
I am a big yoga fan and happiest when I’m on my mat. I like to get out and about with my dog Vegas, we can often be found on long walks which usually involve a pub or a café! Travelling is a big part of my life, I’ve previously climbed Mount Fuji, visited the Great Wall of China and bumped into a black bear in America.  

We hear that money is tight in this time of austerity, yet you and the team keep stretching further and further and bringing more money in year on year.  How do you do it?  
There’s no getting away from it we have to work harder than ever for every penny raised now, the charity sector is larger than ever and with pressure on all types of funding streams this makes the challenge huge. The fundraising team is brilliant! It’s not just the 3 of us you see in the office, there are lots of volunteers who most people at the Centre probably don’t see. For example the 60+ volunteers who collectively make Spirit of Christmas be the successful event it is or the people who spare a few hours to man a stall at a local fete – they are all brilliant and we couldn’t possibly achieve what we do without them.

GSK impact award was a huge accomplishment. Anything you'd like to share about that 'experience'?
The GSK/Kings Fund IMPACT Award was a real turning point for NMC as an organisation, it gave us the confidence to stand back for just a minute and reflect on just what a fantastic organisation NMC is. We have grown in confidence as a result of the Award, it supported the belief that we needed to expand and its provided new opportunities. Sitting in the Science Museum in London and seeing the NMC film for the first time was by far the ‘best bit’ of the Award, there on a cinema size screen was NMC in all its glory – a super proud moment!

How did you decide to become a fundraiser and how did you hear about NMC?
Totally by accident! After completing my Marketing Masters degree I applied for a position in the marketing department at former high street retailer Littlewoods and at the same time spotted an advert for a fundraising role at a charity based in Cheshire. I had no idea where Winsford was and didn’t have a good grasp on fundraising if I’m honest. I had interviews for both jobs, was offered both and accepted the fundraiser role at NMC. I had been completely sold by NMC’s atmosphere, it was, and still is, such a positive and friendly place and a world away from a stuffy corporate office environment where I was working. The breadth of the role would be challenging and whilst I had some of the skills required, I knew a lot of learning was also needed.

The chance to do a lot of different things such as PR, marketing and selling tickets to events and pitching to funders seemed a match to my marketing skills. I could see that the impact of successes would impact on people rather than a faceless company – that ticked my box and still does today. I can see clear as day why I’m doing what I do at NMC, gaps in service and provision for the MD community haven’t gone away so NMC needs to continue to do what it does.

You have a love of VW Beetles - any reason?
I’m a bit of a girly girl believe it or not and I think the Beetle is a super cute car, I’ve had 3 so far loved them all and I smile when I’m driving it. Is that a reason?  

You've been 'roped' into some of the crazy NMC challenges over the years - what were they and would you do any of them again?

I think I’ve got away with it quite lightly to be honest! I was sponsored by a funder years ago to abseil down a quarry in North Wales and of course I couldn’t say no. I was terrified when I was on the cliff edge but once I got to the bottom I wanted to do it again with my eyes open! A few years ago I took part in Nightrider a sponsored cycle which was a new event to NMC’s calendar. I managed to complete the 100km overnight cycle through central London along with other NMC colleagues and can highly recommend it. Piccadilly Circus is as busy at 2am as it is at midday!

 Does the new build excite you?  That must be a huge challenge on top of the existing challenge to keep the NMC funded!!
The new build is terribly exciting and has been a totally different fundraising challenge. Funding for the expansion has come largely from funders who would not typically fund our day to day activities which protects the vital day to day funding which is equally as important. The next challenge will be funding a larger NMC - never a dull moment in the world of fundraising! 

How much money have you raised in total - as in while you've been part of the NMC family?
I have no idea I’d like to think its millions. When I first joined NMC 15 years ago the cost of running the Centre was around £300,000 today its a million pounds!

NMC has changed a lot over the recent years - what has been the biggest change you've seen, or the one you're proudest of being a part of?
The expansion project will probably be the largest single change in my time at NMC. A larger NMC means more people can benefit from our services which will be great and I'm chuffed to have been involved in this chapter of the NMC story. 

Hydrotherapy Study - Carley Davies

Having volunteered at the NMC since January, I became involved in helping out in the Wednesday Hydro sessions.

A keen swimmer myself, I really enjoyed assisting, but most importantly, seeing the positive benefits of the hydrotherapy for people with neuromuscular conditions and muscular dystrophy. The physical and psychological benefits were clear to see, and I wanted to investigate the effects further. Consequently, when it came to choosing a research topic for my Masters dissertation, I chose to study the physical and psychological effects of hydrotherapy.

Upon researching the topic, I found that hydrotherapy provision on the NHS is very limited, particularly for people with long-term conditions, and particularly for adults. I found that there were plenty of studies demonstrating the effects of hydrotherapy for people with arthritis, for elderly people, and those with MS and fibromyalgia, but not for people with neuromuscular conditions.

Hopefully, by doing this study I will be able to demonstrate the benefits, and (should the work be published), promote this effective therapy to the NHS and GP’s. My study will consider the acute (that is, immediate) effects of the sessions on participants at the NMC. I have almost completed the data collection with my eight participants, and will hopefully be able to show the impact that it has. My research has involved physical and psychological tests (in the form of questionnaires), and when I have my results, I will be keen to share them with One Voice!

Listening Books

Reading a book can be difficult if you are not able to hold a book or if you have difficulty holding it for a long period. If you have an illness or disability which makes it difficult to read the printed word in the usual way, you can join Listening Books to gain access to over 8000 fantastic audiobooks for leisure and learning, and you can choose from 3 ways to receive your books: downloads; streaming to an iPod or other portable device to listen on-the-go; or if you prefer you can receive CDs through the post.¨

If you choose to download the books, membership costs £20 a year which allows you to download up to two new books every day. For more information visit listening-books.org.uk

Free Public Transport

Bus passes in England
If you live in England contact your local council to find out who issues disabled bus passes in your area as part of the English National Concessionary Travel Scheme. You’re eligible for a disabled person’s pass if you live in England and are ‘eligible disabled’.  The Government website www.gov.uk/applyfor-disabled-bus-pass lets you enter your postcode to direct you to more information on your area.  If you live in Greater Manchester and your pass has been issued by Transport for Greater Manchester you can also travel for free on trains and Metrolink trams in Greater Manchester. There are similar arrangements in other areas.

Bus passes in Wales
If you live in Wales and are aged 60 or over or disabled you may be entitled to free travel within Wales.

Welsh concessionary bus passes are for those who live in Wales and meet one of these criteria:
• are aged 60 or over • disabled – see the categories below 
• injured service personnel or injured service veterans and receive an award under tariffs 1-8 of the War Veterans Compensation Scheme or the Armed Forces Compensation Scheme.

The pass can be used at any time of day. A disabled person may request one companion pass for when they require assistance to travel.

Applying for a pass
The scheme is run by local authorities. Contact your local authority for information about free bus travel and how to apply for a pass.

You will need to provide evidence to your local authority to confirm that you are eligible. Your local authority will issue you with a bus pass (Smartcard) if you are eligible.

Categories of disabled persons
You may qualify for the pass at any age if you come under any of the following categories, to the required level: 
• have sight loss
• are deaf
• cannot speak
• have an impairment with a substantial and long term adverse affect on ability to walk
• are without arms or have long term loss of the use of both arms
• have a cognitive impairment
• would be refused a driving licence due to a condition other than persistent substance misuse
• have a cardiac, locomotor, renal or neurological condition
• receive the mobility component of Personal Independence Payment 
• receive the Higher Rate Mobility Component of Disability Living Allowance.

To find out whether or not you may be eligible you should contact your local authority. You can find out how they determine eligibility by reading the guidance on eligibility on the ‘Guidance to local authorities’ page.

Rail travel in Wales
Where bus services are limited, concessionary travel passes can be used on certain train lines. This is open to all free concessionary travel pass holders in Wales when travelling on these lines. Further details can be found on Arriva Train Wales www. arrivatrainswales.co.uk/ConcessionaryTravel

Alert Cards

Muscular Dystrophy UK has created condition-specific alert cards for different muscle-wasting conditions. These new cards mean that people living with muscle-wasting conditions and their families will have the security of knowing they can easily inform emergency health care professionals of the vital and specific issues that affect children and adults with these conditions.

Alert cards are conveniently shaped to fit inside a wallet and outline key recommendations and precautions that health care professionals would need to know during a time of worsening health.

To make sure the cards are effective they cover a wide range of possible symptoms and situations. The card also includes important contact information on a person’s specialist neuromuscular and respiratory teams, which will ensure expert advice will be much easier to access.

They currently have alert cards covering ten conditions. For more information and to find out how you can get a Muscular Dystrophy alert card visit http://www.musculardystrophyuk.org/ alert-cards/

Prescription Drugs and Driving - Karen Pritchard

It is illegal in England and Wales to drive if your driving is impaired due to having certain drugs in your body, or if you haven’t been prescribed them.

Talk to your doctor about whether you should drive if you’ve been prescribed any of the following drugs:
• amphetamine, eg dexamphetamine or selegiline
• clonazepam
• diazepam
• flunitrazepam
• lorazepam
• methadone
• morphine or opiate and opioid-based drugs, eg codeine, tramadol or fentanyl
• oxazepam
• temazepam

You can drive after taking these drugs if:
• You’ve been prescribed them and followed advice on how to take them by a healthcare professional
• They aren’t causing you to be unfit to drive even if you’re above the specified limits.

You could be prosecuted if you drive with certain levels of these drugs in your body and you haven’t been prescribed them.

The law doesn’t cover Northern Ireland and Scotland but you could still be arrested if you’re unfit to drive.

Informing the DVLA about Changes in your Health - Jon McVey

I like driving, I have always enjoyed the feeling of independence that enables me to do many useful and enjoyable things.

After spending time in hospital following a head injury after a fall I was advised by the doctors that I couldn’t drive for 3 months and  needed to inform the DVLA.  I completed a form B1to report my medical condition to the DVLA.
 
If a doctor tells you that you must stop driving, or if your health means that you cannot drive to the appropriate standard you must surrender your licence.  If you don’t you can be fined up to £1,000.
After I had informed the DVLA I was quite quickly sent a letter which explained that the process would take some time. My details were referred to the medical committee which resulted in additional delays. They wanted additional information including an assessment with my GP. If I had completed the original form with my GP, this stage might not have been necessary and saved some time.  In future I will certainly do this. When the three months were up I still hadn’t heard from the DVLA or received my licence back.  That was a concern as we were about to go on holiday and not being able to drive would have been a problem, so I phoned the DVLA Drivers’ Medical Enquiries line. 

They informed me that this was not a problem as there is a provision in law under Section 88 of The Road Traffic Act (RTA) 1988 that allows you to drive while DVLA processes your application. In practice, this means that when you send your application to DVLA to be renewed and your license expires (runs out) while they are processing your application, you may be able to continue driving so long as your doctor says that you are fit to drive. There are times however when you may need a licence, e.g. travelling abroad or changing your motability car. 

With relief, I finally did receive my new licence. I now have to renew it every three years and have renewed it once. Changes in my ability to use a handbrake meant that again it was a long process, but I was able to continue driving while they reviewed my application and arranged assessments.